Hi, @beka. You sound a lot like me, and I strongly suspect you have some of the same stuff I have, because you have a lot of the same symptoms. With this stuff, one cannot always tell because every person has their own variation of genetic issues. But maybe I can help. I struggled with my stuff for 76 years before I finally began to get a handle on it. I have the up-and-down double vision as you. And splitting nails. and cracking teeth, and areas of skin issues, and enlarged organs all over me; heart, lungs, kidneys, liver, lymphs, tongue, cerebrum, etc. Universal Organomegaly. Many cancers, including on the larynx, melanomas, and failing organs removed surgically: Appendix, thyroid, tonsils. And both central and obstructive sleep apnea. And I missed a lot of school, and did not participate in athletics until a sophomore in high school. But then I played, coached, officiated, and have supported football now for 65 years. And so on. So here is what I have found. There is a family of disease within the cancer field. There is Myeloma. Within that there is Amyloidosis. Then within that there is both TTR and non-TTR Gelsolin, or Finnish Amyloidosis, and a number of mutations off that. The gene name is GSN, Gelsolin. It is systemic (hits everything), can be fatal, often hits the heart and brain heaviest, always shows up in the eyes. The eyes get blepharopathy, or blepharochalaisis. (same thing) Anyway, the blepharo collects protein fibrils around the nose, builds up some visible or not visible growth. This, then, pushes on the eyeball, distorts the shape of the cornea, and causes the up and down double vision. This is also the cause apparently, of lattice corneal dystrophy. But I also have some other genes which cause trouble. Fukutin Limb Girdle Muscular Dystrophy, c2, or m4, or such. FLGMD. This seems to be a very early mutation off the GSN. My birth doctor knew I had some problem almost immediately after birth. I have fought these many years. And there are other genetic issues. And there are about 50 family in my boood line that have the same issues, ranging from simple multiple myeloma to LECT2, Apolipoprotein, and others, clear to my GSN. What do I tell you to do? Get a COMPLETE gene sequencing from Apollo, or Sequencing.com, or one of the others. It costs about $400, but is a real bargain at that price. I also have the genes for Ankylosing Spondilitis, loss of white matter in the cerebrum, both rheumatoid and psoriatic arthritis, So that is what I suspect you have, but you will not know until you have the genetic sequencing, the TOTAL job, done. God Bless. You will need all the help you can get.
@oldkarl So well written! Thank you for sharing.