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Worsening diplopia with no explanation

Autoimmune Diseases | Last Active: Dec 27, 2020 | Replies (47)

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@ess77

I'd like to join ashby1947 and Erinmfs for that glass of wine, or two or how many we see. Sure makes life interessting, eh? I never know when the dilopia will appear. I think it's worse when I'm tired, definitely when I get up too early and my body isn't ready to start the effort or moving around. Those early Mayo appts are tough for me. Kills the entire day, exhausted to a point of almost unable to function. And, takes a day or two to recoup. I was diagnosed with MG years ago, after that neurologist decided I didn't have MS. I had several IV treatments that did help, but then testing didn't support the diagnosis. So, back he went to MS. The sight issues have never been accurately diagnosed. I see the Mayo neuro opthomologis in 2 weeks....can't wait as I'm really praying for some answers. and some suggestions for help. I drive ok, but if I begin to see double, blurred and whatever, it does help to close one eye, usually the left as it's easier to keep closed while driving. I don't start out with the problems, tho. I'll not drive not seeing well, but if it hits while driving......Sue, I think you mentioned you have some glasses that help? I expect to go that route if he recommends. These sight problems tire me physically. It's work to see and very frustrating, isn't it? BTW: MGMolly, for several years I couldn't see well with either eye because my lids were drooping so badly. There were time last year I was looking through little slits to see. What a hoot that was! If that's part of your problem, here was my solution. Mayo Opthomology Surgeon tightened the lid muscles so they actually work properly, I can open my eyes all the way and they weill stay open. Makes a big diff in ability to see! Ck it out. It was easy, simple surgery, worked perfectly, took several weeks to heal completely, and I had to pay a portion of the cost since it can be beneficial as plastic surgery. Yes, I see....AND I have no loose skin or wrinkles....looks good, as a side effect. I'll let you know what the tests show in couple weeks. Merry Christmas to all and special Christmas blessings. Elzabeth

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Replies to "I'd like to join ashby1947 and Erinmfs for that glass of wine, or two or how..."

hey, thank you for sharing, a fellow MG here on Christmas! I had a minor car incident, I gave up driving. I tried the 'one eye'd driving, but it scared me. I just suck it up and call and uber. Let's get together and have a glass of wine this week, we can count and figure out how many we actually have! 🙂 I always get 2 for the price of one, like in that photo, that's how I see on the left-hand side.