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Myelodysplastic Syndrome (MDS): Did you have stem cell transplant?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 27 8:12am | Replies (54)
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@JustinMcClanahan

Hello @hklass. I would like to invite @dchavian, @nchase, @jaylevel1, @teammeadows, @donnaclabaugh, to this discussion as they have all discussed being diagnosed with MDS, and a few mentioned taking vidaza (Azacitidine) as well.

@hklass, if you don't mind explaining, what is the difference of MDS and MDS with refractory anemia with ring sideroblasts?

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Replies to "Hello @hklass. I would like to invite @dchavian, @nchase, @jaylevel1, @teammeadows, @donnaclabaugh, to this discussion as..."
hklass | @hklass | Mar 21, 2019

Is there nobody with MDS out there? I really need to contact someone who has been treated with Vidaza (Azacitidine) What about treatment for iron overload with Deferasirox? I'm afraid to take these treatments because I only have a problem with my red blood cells, but both of these meds will reduce my white cell count as well as my platelets. I'm afraid that the meds will be worse than the illness.

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