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I'm having multiple odd episodes that are keeping me undiagnosed. Help
Brain & Nervous System | Last Active: Oct 19, 2023 | Replies (203)Comment receiving replies
@contentandwell I trust my doctor but she, to me, is a small fish in a big pond. I believe she knows things but isn't as up to speed as I would like and this is many many doctors later. I wasn't diagnosed with fatty liver, except one liver doctor saying the parenchymal liver disease found in the ultrasound "could" be fatty liver. The others said it's nothing to worry about, you're good. However, the doctor that did mention "could be fatty", has not made an effort to move forward and he made it sound like a biopsy is a waste of time and then there is bleeding potentially in the future. Not sure why but it was brushed under the rug.
Replies to "@contentandwell I trust my doctor but she, to me, is a small fish in a big..."
@johnwes5819 It sounds like you've got a lot going on. There was one set of symptoms that was familiar to me which raised two questions for me: what is your blood pressure and what is your hemoglobin?
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@johnwes5819 This is like the doctors up here, 55 miles north of Boston. They simply do not have the experience in conditions that are less common.
Since it is not fatty liver, I have no other suggestions, until you can get to a major medical center that is a teaching hospital. If you continue to work with the doctors where you are, one of them may eventually come up with a suggestion. That’s what happened to me, the neurologist I was sent to suggested that my problem was my liver, which it was! I was sent for a CT scan, the diagnosis was made, and then I went to Boston for treatment (transplant).
JK