Connect
← Return to I'm having multiple odd episodes that are keeping me undiagnosed. Help
Discussion
I'm having multiple odd episodes that are keeping me undiagnosed. Help
Brain & Nervous System | Last Active: Oct 19, 2023 | Replies (203)Comment receiving replies
@hopeful33250 Thank you for your reply. I would like to speak with an endocrinologist. I had visited one that needed a referral but I needed something wrong in order to be referred. So my doctor used the low vitamin D diagnosis as a reason to see him last year. Well after visiting, he said my labs looked fine and his daughter that quit college because of anxiety and depression had the same symptoms as me. So he was biased because of his daughter. He gave me a number for a psychiatrist and that was it. No further testing, no extensive work up. Just "your labs from your other doc look fine except for vitamin D, take a vitamin D supplement, and call this psychiatrist, take care". I've never been to another endo since. That was in March of last year. I would love to visit the mayo or university but my insurance kind of has me tied down to Indiana.
Replies to "@hopeful33250 Thank you for your reply. I would like to speak with an endocrinologist. I had..."
Connect
I can certainly understand the restrictions made by insurance companies, @johnwes5819. Does Indiana have any medical schools that you could visit?
If not, I would at least research a very experienced endocrinologist that your insurance would cover.
The one clue you have provided that might indicate hyperparathyroidism is the kidney stones.
Once again, going back to the "Sherlock Holmes" comparison, you will need to do some research on your own. In other words, be your own detective in solving this medical mystery you find yourself experiencing.
Here is some information about hyperparathyroidism, https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194. You might also research hyperparathyroidism using "Google Scholar." Read these and see how many symptoms you have that apply to your current situation.
Once you get enough research together, then I recommend that you see a new endocrinologist and take your symptoms and your research and ask for a more thorough work-up. Being your own patient advocate will be your best approach at this time.