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DiscussionI'm having multiple odd episodes that are keeping me undiagnosed. Help
Brain & Nervous System | Last Active: Oct 19, 2023 | Replies (203)Comment receiving replies
Replies to "@predictable Thank you for your sympathy. it started with me jumping through the hoops of a..."
@johnwes5819 I’m so sorry you’ve been going thru all of this! I strongly encourage going to a university medical center. When I was very sick last year, I begged for an MRI, but the doctors here could barely interpret it. My husband got on the phone and called University of Colorado Health. From my symptoms,etc, they put me into the neurology clinic and I’m being well taken care of. Yes, it means a long drive to Denver, but... I sure wish you luck. Let us know what happens! Becky
Two quick responses @johnwes5819, then off to town for the morning. First, the collection of doctors doesn't form a team without a communication system and a respected professional who wants to lead and will bring all the others into line. In my case, the team was ready to form within staff of the HMO. Second, your personal expertise -- developed with a lot of research of the possibilities -- has the potential to track down causes of your symptoms, but it also accompanies you as an encyclopedia when you visit a doctor whose practice is highly focused and comparatively narrow. In this case, consider keeping your questions to those that the doctor is likely to have an answer for; s/he understands what you're talking about and have studied, but needs to reframe her/his approach and undertake a novel or obsolete diagnosis and treatment. One answer to this is, as Teresa @hopeful33250 said, a university medical center with a multidisciplinary approach. Martin