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I'm having multiple odd episodes that are keeping me undiagnosed. Help
Brain & Nervous System | Last Active: Oct 19, 2023 | Replies (203)Comment receiving replies
Well @johnwes5819 I'm in deep sympathy for your feelings of uncertainty about where to turn. Your collection of medical personnel is impressive, but may I ask: Who's in charge? That is, does your medical team have a leader and a communication system to share personal information? Were you referred to that variety of specialists by a personal care physician who does that for a living? I hope we can track down a promising medical practice in Indiana that could offer you the kind of universal diagnosis and treatment that you need. Meantime, your focus and intensity in search of causes and treatments are awesome. There must be a medical service in Indiana that could help you manage and direct your care. Martin
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@predictable Thank you for your sympathy. it started with me jumping through the hoops of a primary care doctor sending me to a psychiatrist. I tried 6 months worth of antidepressant medications that made me feel worse overall. With no background in medical but someone that has a great grasp on learning new information. I took it upon myself to read 100's to 1,000's of the long boring mayo clinic assays that nobody fully reads but I did. I started with biochemistry, then cellular biology, and so on. When I went to see the psychiatrist for a 7th prescription to try, I asked her about vitamins and the precursors to serotonin. She basically said, "none of that matters" that's when I knew the doctors I was seeing were cookie cutter doctors that belong at band-aid hospitals. So I had to research for myself. Because of my random adrenal surges that didn't seem to have a rhyme or reason, I had my cardiologist check my urine for catecholamines to exclude pheochromocytoma and I've been at this journey by myself. I have an ND right now who's work with me but it's been a slow process. I've only been seeing her for a few months. There hasn't been one doctor in charge because they either run out of ideas or my issues are just too complex. I would love to have a captain of the ship but for right now it's just me. Most of my doctors have told me I'm more knowledgeable than their students. I really don't want to know any of this stuff I just want to fix myself since none of the doctors are.