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I'm having multiple odd episodes that are keeping me undiagnosed. Help
Brain & Nervous System | Last Active: Oct 19, 2023 | Replies (203)Comment receiving replies
Hi @johnwes5819. I am as puzzled as you are about your complex of symptoms. I looked at your other message, and it prompted me to respond right away because what I saw stood out so clearly as a potential problem -- 50,000 International Units of Vitamin D3. That's a very high daily dose of Vitamin D3 and might be the source of several of your troublesome symptoms. I suggest that you have a direct conversation in person with a doctor you trust, first thing in the morning, about the Vitamin D3 dose. Second, you made no mention of what kind of doctors are on your medical team. Given the range of your symptoms and their mysterious relationships, would you consider arranging for thorough examination by an endocrinologist; this could reveal something about your body chemistry that is not now known -- for example, the catecholamines, hormones made by the adrenal glands (epinephrine (adrenalin), norepinephrine, and dopamine). Third, would it be possible for you to undergo a complete examination by Mayo Clinic at Rochester, Minnesota, or Scottsdale, AZ, or Jacksonville, FL? Mayo or a similarly equipped complex of clinics with a history and reputation of patient-directed, full range, diagnosis and treatment would be a good option to consider. We can help you make arrangements with Mayo. Martin
Replies to "Hi @johnwes5819. I am as puzzled as you are about your complex of symptoms. I looked..."
Excellent advice! I don't see where this is written but if you are taking 50,000 IU of vitamin D3 per day, FIFTY TIMES the suggested dose...that could be the cause of all your symptoms. Why would you take so much? I don't understand. Excess vitamin D causes all kinds of reactions in your body. I read that it can take a year to rid your body of the excess amount of vitamin D. Have your blood levels checked,
Fatty liver is very common among those who are overweight.
I think it is important to drink plenty of water every day to flush your system and go for big walks to stimulate all your internal organs and clear your mind. Put sun screen on if you live in a warm climate so that you avoid even more vitamin D from the sun.
Good luck, John!
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@predictable Thank you for the reply. I was given the vitamin D3 at a high dose to get my levels back in range and now it is back in range. However, my symptoms have been the same since before I started the vitamin D3 and nothings gotten worse or better. I would love to go to the Mayo Clinic. Unfortunately, I can't afford it and my insurance has me tied to the state I'm in. I've had lots of labs done and wish there was a way to just send everything over to them but I know it doesn't work that way. I'm in Indiana and there really isn't much out here as far as teams that work together for a patient. It almost sounds like make-believe to have that kind of service out here. So far I've seen 2 cardiologists, 1 electrophysiologist, 3 gastrologist/liver specialists, 2 allergy specialists, 2 therapists, 2 psychiatrists, 1 endocrinologist, 1 hepatologist, 1 urologist, 3 DO's, 3 MDs, and 1 ND.
Luckily through all of this, I've been able to keep my sanity and keeping motivated for answers. I would love to visit the Mayo but financially luck isn't on my side right now. I haven't been able to work in 2 years and disability laughed in my face 3 times.