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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: Apr 14 11:56pm | Replies (358)

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@amandajro

That is great news that you have an appointment scheduled for 2/23 to address your concerns your twitches. Can I ask if the information shared in this discussion by other members, or that you've found in looking into your symptoms, has you thinking your GP will be considering Benign Fasciculation Syndrome as a potential diagnosis?

What would be helpful for members in the community to share with you ahead of that appointment? What is your main concern with regard to your twitching?

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Replies to "That is great news that you have an appointment scheduled for 2/23 to address your concerns..."

No, honestly I think I will be viewed as a middle aged woman who is anxious and I will be pacified by that. Where I live health care is really poor. I can only suggest to the nurse practitioner that I would like her to do some investigating, like routine blood tests, maybe an x ray of my back to see if a disc is causing a pinched nerve... I feel like I’ve gotten a handle on my anxiety so I’m hesitant to lump my twitching, tremors, jerks (whatever you want to call them) under the anxiety heading. All I know is I need answers. My main concern is it’s a symptom of a more serious disorder. If they can rule out MS,
ALS, and vascular disorders I’d be at peace with the twitches. Thankful I found this group. Just knowing I’m not the only one going through the agony of not knowing why these occur is comforting. Thanks again.

I had my appointment today with a new provider. She was horrible basically and it did not go well at all. She did agree to running lab work. She said she’s pretty certain I have restless leg syndrome, but I’m anything but sold on that diagnosis. She ordered CBC, thyroid vit b 12 vit d and lipids panel. She also cut me off my anxiety meds so this should be fun. Thanks all, I’ll keep you posted.