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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@greeneyedenergy

I’m so glad to have found this thread. I have what feels like bolts of electricity, tingling and numbness. I took a 30 second video of a tremor in my ankle to show to my new dr when I get an actual appointment. Right now I’ve been waiting a month to get just a telehealth visit.
A little background, I have a history of myoclonus jerks just as I’m falling asleep. I’m a 51 year old female. The jerks started back in my early 20’s.
They prescribed me a new drug at the time-neurontin. Eventually the jerks went away.
Fast forward to last year and the pandemic. My teenager runs away and I haven’t seen him in 10 months. I know where he is (safe with family) but as a single mother it completely wrecked me and still does. Even though I have a therapist (she is online because of Covid) I can’t help but wonder if my tremors/jerks/whatever they are ... is it just stress?
I should add that when they occur they are quite painful. They started in my legs and now they are in hips and thighs, arms and neck.
Back in September 2020 when the twitches started my previous gp prescribed me xanax. I’ve taken them every day since then and I honestly feel they wear off so quickly but without them I would not be able to sleep at all due to the myoclonic jerking.
I also was just diagnosed with a Morton’s neuroma by my podiatrist, not sure if it’s related.
One other thing I have going on... I just got a memory foam mattress and it is horrible, (I’m heavy at the moment (gained 50 pounds during 2020) I sink into the mattress and wake up with a raging backache. I am now sleeping on the floor in the living room until I can invest in yet another mattress.
I am nervous about a couple of things. The first is explaining all this to my new doctor. I don’t want all my symptoms to be chalked up to anxiety yet I also cannot afford tests I may not need. The second is running out of Xanax and going cold turkey as I’ve read it can cause terrible withdrawals.
If you have read this in its entirety, God bless you. I’m really just ready to start feeling better and moving on to enjoy life. Thank you

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Replies to "I’m so glad to have found this thread. I have what feels like bolts of electricity,..."

Hast du es noch immer? Habe das selbe blitzartige Zucker wie elektrisch jede sekunden keiner weiss was es ist. Wird immer mehr. Es hat vor 2 jahren begonnen. An manchen Stellen permanent. Zu hoher Puls im stehen, Taube Stellen, kribbeln. Es ist wie folter