@krfreitag
Hi and welcome to Connect. Firstly, please don't get into a headspace where you are thinking you are crazy. You are justifiably annoyed by this, and that is perfectly normal. I'd hold off on spending on further expensive consults with doctors for now. For one thing, the medical community does not know what causes it. Also, they seem to mostly recommend drugs to treat it. Not a great option for something that is not causing nerve pain and is not keeping one from leading a normal life, albeit a less pleasant one.

I understand why you feel anxious about this issue, especially the fact that you can have a twitch in one place for such a long time. I imagine mild BFS is common as I too have had twitches on occasion, but not often and not for more than a few minutes or a half hour at most. I remember one not long ago in the leg while I was in bed at night that went on for about a half hour. Mostly an annoyance in my case, nothing more. For you it's different obviously. I would recommend reading as much literature online and elsewhere as you can. If there is a treatment out there somewhere you are more likely to find it yourself than hear it from your average medical practitioner because the conventional wisdom is there is no cure. Also, involve yourself with others who have similar experiences with BFS such as people here on Connect. Look on the bright side: one thing to be grateful for is the absence of nerve pain w.r.t. this condition.

I hope this issue subsides for you. I do understand that it feels like it's driving you crazy at times. Hang in there, look for ways to calm yourself and for ways to take your mind of of the twitching if you can. One thing I just thought of: many people are doing MFR (myofascial release) these days for numerous health issues. Perhaps look into that (there is a discussion about it here on Connect). And do interact with people here, they are a good and knowledgeable bunch. Best, Hank

@krfreitag I'll extend my Welcome to Mayo Clinic Connect, an online community of patients supporting patients.

You are having constant twitching and you are terrified.

I'd like to invite members that have discussed this topic, like @etana @captainanxiety8 @didi09 @jenniferhunter @lizaa @didi09 @tutina @sonsowy @richman54660 @borkoksg

I'm wondering if you have considered getting a second opinion?

@krfreitag I had spontaneous muscle twitches, but for me that was related to spinal cord compression from a bad disc. Since decompression surgery, they have stopped. A muscle will twitch if the nerve that supplies it is being compressed and that might happen because of tight muscles or fascia. The frequency of the electric signals in a nerve determine if it twitches or goes into tetany which is a sustained contraction. You may want to do some stretching to see if it helps. Take a look at our discussion on myofacial release therapy which is a way to stretch the tight tissue. You can see a PT who does this or try on your own. Yoga might help as it also stretches fascia. This needs to be done gently because aggressive stretching initiates a protective response generating more contractions.

That is a good sign twitching stops when you sleep. It may be posture related so look for a pattern of what position reproduces it. I am a Mayo surgical patient and did meet an ALS patient in the waiting area and I could see the twitching in several places in his arm. Another thing to realize is that muscle contractions have a chemistry component where charged ions are crossing the muscle cell membrane causing the contraction. In general, magnesium helps muscles relax and a lot of us are deficient in it. Soaking in an epsom salt bath for 20 minutes will allow magnesium from the salts to be absorbed through the skin. You could try supplements to see if it helps along with vitamins with minerals. Here is our link to the myofascial release discussion.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/