Hello! I wanted to chime in as a fellow BSFer... I was diagnosed in 2018 and am also trying to figure it all out. It seems it manifests itself so differently in each of us. I deal with minor twitching and parentheses on top of feet. The hardest symptom for me are the any bite type itches. My symptoms can be from undetectable to keep me up at night. I have never attempted meds, but I did want to share a piece of info that may be helpful. I have several nurse friends who researched the condition and found somewhere that Benadryl may be in part the cause of my condition. I took low dose of Benadryl for 13 yrs to manage allergies and help with sleep. Apparently it contains a particular ingredient that may have contributed to the disconnect of synapses in the brain that connect to the nerves. Feel free to check it out but thought it was important to share.

God Bless and keep going!

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