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Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: Apr 14 11:56pm | Replies (358)Comment receiving replies
Hi,
I was diagnosed with BFS over 3 years ago. I had EMG and nerve conduction studies ( done at Mayo in 2017) I did try several medications Tegretol and Lyrica but did not like the side-effects. I have been seen yearly by neurologist at University of Michigan who reassures me that symptoms are still not concerning for progressive neurological disease and I have felt reassured by this and just focused on living my life and ignoring the twitches and cramps. I had frequent twitches that would last for seconds to minutes, sometimes in one muscle for several days ( but always coming and going.) Recently I have had one twitch in my left forearm that has been constant for over 10 days, never stopping, it is affecting my ability to type and is very annoying. I am feeling very worried about this and that it might be a sign of a non-benign process. Has anyone experienced a constant one muscle fasciculation that lasted over a week? My anxiety is getting the better of me so any suggestions for how to deal with that would be appreciated. I do have a neurology follow up appointment in October. Thank you.
Replies to "Hi, I was diagnosed with BFS over 3 years ago. I had EMG and nerve conduction..."
This is so me. I’m terrified daily. I have had constant twitching for a year and a half. No other symptoms. All over. Mine too sometimes last for a week or more in one spot and then others come and go. It’s so odd. I don’t have them when I sleep but the second I wake up they start. I don’t feel stressed and I am healthy otherwise. I can’t decide if it’s anxiety or not. The twitching definitely causes anxiety but if I didn’t have them I don’t feel anxious. However, I do always worry about myself medically. I had an emg which was normal. I asked him what else we could test he said nothing which I don’t believe.Mentioned something about a sodium potassium channel? I’m willing to do anything to rule out a motor neuron disease. And then I read you can’t rule that out for five years. That makes this doubly worse. Thinking of getting second opinion But it’s All getting so Expensive And feel I’m crazy And just need to let it go.... I’m at a loss.
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Hi @etana and welcome to Mayo Clinic Connect. You'll notice that I moved your message to this existing discussin about benign fasciculation syndrome (BFS). I did this so that you can connect with other BFS members like @captainanxiety8 @jenniferhunter @lizaa @didi09 @tutina @sonsowy @richman54660 @borkoksg and others. Click VIEW & REPLY to read through past comments.
Etana, having a persistent twitching lasting 10 days must be worrying. Do you have additional symptoms besides the twitching that cause concern?