Thanks for your reply. The AKI happened during my liver transplant and when I woke up I had lines everywhere. I think dialysis was first done through a line in my neck and then they put a port in my upper chest. My egfr was 37 three months ago and in a steadily decline it went to 23. For some reason my Tacrolimus level drastically increased (without a dose change) and that is probably what is causing the egfr to decrease. They adjusted my tacro but it is still a little high and they don't really understand what is going on. My egfr is now hovering between 23 and 26. They have me doing labs every 2 weeks. I live in a western state but I have doctors in both my home state as well as Arizona.

I really don't want a living donor. I have a grandchild that was born with kidney issues and she has been told she will likely eventually need a transplant. Her egfr is a little better than mine so she is doing well now and probably will for a long time. The same people that could be my living donor would likely also be her living donor. I want to make sure she has one available if she ever gets to that point.

Jump to this post