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@transplant2017

Thanks for your reply. The AKI happened during my liver transplant and when I woke up I had lines everywhere. I think dialysis was first done through a line in my neck and then they put a port in my upper chest. My egfr was 37 three months ago and in a steadily decline it went to 23. For some reason my Tacrolimus level drastically increased (without a dose change) and that is probably what is causing the egfr to decrease. They adjusted my tacro but it is still a little high and they don't really understand what is going on. My egfr is now hovering between 23 and 26. They have me doing labs every 2 weeks. I live in a western state but I have doctors in both my home state as well as Arizona.

I really don't want a living donor. I have a grandchild that was born with kidney issues and she has been told she will likely eventually need a transplant. Her egfr is a little better than mine so she is doing well now and probably will for a long time. The same people that could be my living donor would likely also be her living donor. I want to make sure she has one available if she ever gets to that point.

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Replies to "Thanks for your reply. The AKI happened during my liver transplant and when I woke up..."

@transplant2017 A living donor is not necessarily someone who is related to you by blood. What matters is the matching of several different factors. My sister wanted to donate to me, but we recently found out I am not a candidate for transplant for at least 3 years due to other health issues. I gently reminded her that she could be evaluated now, and be an altruistic/non-directed donor to someone, if she wants. https://kidneydonormatch.org/ is a site you can explore. My eGFR is around 24-27. Yes, in an emergency, a catheter line goes into neck or upper chest. You may be able to do peritoneal dialysis if you need to go there, in the future.

It's good to hear your team is watching closely, and I hope you can get stabilized in short order. From everything I have heard, dialysis is not turned to until function drops around eGFR 10, although a nephrologist should start discussing it with you long before that.
Ginger