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What's your experience with dialysis? Give & get support here
Kidney & Bladder | Last Active: Apr 24, 2023 | Replies (345)Comment receiving replies
@fiesty76, I have compazine and sip on ginger ale. My first post in this thread asked about others' dialysis experience and only a couple of people responded; I didn't get many answers. But meeting others who are at my dyalsis clinic the same time I'm there has been an eye opener. With a couple of exceptions, most of them tell me they feel lousy much of the time. I get the impression they put up with the side effects simply because they still want to live but a couple have indicated they are considering stopping dialysis and letting nature take its course because of the misery dialysis has occasioned. I'm not at that point yet but I sure do understand it. I'm not ready to give up but I'm not ready to stop whining, either.
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@kamama94 Have you let your neph know how you are feeling? I am part of a kidney support group found at rsnhope.org. What we have discussed is those who are able to do peritoneal dialysis, which is done daily, seem to have a better quality of life, as their blood is cleaned everyday. Hemodialysis, which is done two or three days a week, based on the patient's needs, means the toxins in your system have a chance to build up between sessions. And if you dialyze on a Mon-Wed-Fri schedule, you go three days between Fri to Mon, so you can get to feeling pretty punky.
Here is me raising a glass of beverage of your choice, to feeling better soon. And feel the arm around your shoulder.
Ginger