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DiscussionWhat's your experience with dialysis? Give & get support here
Kidney & Bladder | Last Active: Apr 24, 2023 | Replies (345)Comment receiving replies
Replies to "I have certainly learned a lot of medical terms. Each time I mention to my Team..."
@wickenburger, you sound like me. I'm one of "those" patients, aka "difficult." I have a medical background and am intelligent enough to know when something's not quite right. When I injured my leg right after placement of my permacath and couldn't transfer from bed to wheelchair and back or chair to toilet and back, I pitched a fit when I learned they were going to send me home. They offered nursing home placement and I had another hissy fit. Ultimately they decided it was best to admit me to the hospital for a few days, dialyze me there and let my leg rest from the soft tissue injury so I wouldn't go home and fall flat on my face. You're right to inform yourself and to advocate for yourself and if that makes you one of "those" patients known as "difficult," I say you go girl!
The medical treatment that you receive should be yours, and yours alone. The physicians guide you into making the decision, however it is your decision not theirs. To the extent they do not appreciate that, you may consider a second, third, or fourth opinion. In my case, after getting four differing opinions, I went from my big city to Mayo Clinic in Rochester where the doctors put the patient first. They have earned my trust. I have never stopped returning.