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What's your experience with dialysis? Give & get support here
Kidney & Bladder | Last Active: Apr 24, 2023 | Replies (345)Comment receiving replies
@gingerw,@fiesty76,@dhelmstetter, thank you for the information and support. I had hoped to hear from more folks who know firsthand about dialysis but since that hasn't happened I'll just update everyone. I spent most of Fri at the hospital with docs having an ultrasound, blood work, etc., as neph wanted to determine a cause for such a sudden and drastic drop in eGFR in the hope of reversing it. So far it seems to be a mystery to all of us.
The plan now is for me to have outpatient surgery the first of the coming week for a central line for immediate dialysis if needed as well as an arm fistula or graft for longer term dialysis. This couldn't be scheduled on a Friday afternoon and I'd prefer Monday or Tuesday procedures instead of having them done right before a week-end. That way I can stay home with 2 caregivers, Buckey and neighbor/friend who comes over 4 times a day to help out.
As soon as I know when I'm to have those procedures done, I'll post that here if I can. This way all of you can go on my journey with me and read about various elements of my dialysis adventures firsthand.
Keep the positive vibes coming!
Hope and love live here.
Replies to "@gingerw,@fiesty76,@dhelmstetter, thank you for the information and support. I had hoped to hear from more folks..."
My cause was "Goodpastures Syndrome" - a VERY rare autoimmune disease. Had to endure dialysis along with Plasms-ferisus (sp?) a process similar to dialysis but works with the plasma and labumin. Along with Chemo pills, that process DID end the GoodPastures, but my kidneys went from acute to end-stage. I was also warned before a major abdominal aneurysm surgery 6 months earlier that it may result in kidney failure. Either way... I'm now awaiting evaluation next week to see if I'll be a viable candidate for a transplant. I'm 'eager with apprehension.'
@kamama94 Well, dear lady, wish you well on this new journey. Now I think you've got a very good team caring for you, but have to wonder if in light of these new developments you might consider Mayo Clinic? Or, if not Mayo, perhaps another center near you. Don't know how convenient such a visit would be, but it seems to me that no answer is an unacceptable answer. I tend to believe that there are all kinds of medical experts out there who just may know the answer. The trick is to find him her!! In the meantime, please know we are all with you in spirit, and hope you'll have some good news for us soon!!! Take care!
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@kamama94 We'll be crowded in the room alongside of you, not to worry! It might be a virtual crowd, but never fear, you'll feel our energy. I sure hope they can find the information needed to figure out the reason for the eGFR drop.
Ginger