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Undiagnosed for years and desperate

Digestive Health | Last Active: Jun 25, 2023 | Replies (28)

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@vanessab

Thank you for the links! I'm only part way through the first one and it has so many similarities. He is neg for C-diff.

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Replies to "Thank you for the links! I'm only part way through the first one and it has..."

Hi Vanessa, as I am looking for answers for myself, I came across your post. Did your husband eventually get a diagnosis for his symptoms? I sure hope so, and that he’s doing better. On my end, after a long diagnosis/therapeutic desert crossing, tests results are increasingly pointing towards a mast cell disorder (most likely a Mastocytosis. The cutaneous biopsy came back positive. We are now waiting for the genetic blood work result which, if negative, will lead to the more invasive bone marrow testing). Thanks in advance for your reply.