@vanessab Hi Vanessa, and welcome to Connect. I too have no answers, just concern and sympathy. I know what it’s like to not have a diagnosis, but thankfully I only went through that for about a year and a half. After that I vowed that if I ever again did not get a more timely diagnosis I would head to Boston, (55 miles away) and stop wasting my time up here.
I hope you can find a doctor who will figure this out. I think being a good diagnostian is a special skill, obviously that is what you need.
At this point in time, with all he has been through, I think the tight stomach could actually be from stress related to it. Anyone going through all of this would be highly stressed.
Please let us know when someone does figure this out.