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leifg (@leifg)

Young adult with idiopathic sensory axonal neuropathy

Neuropathy | Last Active: Mar 5, 2019 | Replies (8)

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@johnbishop

Hello @trouble1965, I see that you are a first time poster so I would like to welcome you to Mayo Clinic Connect and thank you for posting. I also have idiopathic small fiber peripheral neuropathy. Like you my feet always seem to be cold. I wear compression socks since I also have lymphedema in my legs but it's a blessing when I can take them off at night. I posted what has helped me some in an earlier post here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

There is another discussion here on Connect that may be helpful on myofascial release therapy.

Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Did your doctor or neurologist prescribe any medications for you for the neuropathy pain?

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Replies to "Hello @trouble1965, I see that you are a first time poster so I would like to..."

Hey John , thanks for the welcome and the links. I joined the Facebook group and hopefully I can get some advice and ideas rather than swallowing pills all day. The MFR therapy sounds interesting as well. The doctors have me on pain pills and Gabapentin. Seems to help some. I don’t wear compression socks rather the looser the better for me.