Hello my name is Renee. I'm in the chronic pain group as well. I read your posts and I was horrified by your doctors just not listening!!!!!! I I was moved by your story I looked up your condition, I'm very sorry. I wish you had a chance to have the life you wanted. You sound like a strong woman! Keep it up! Please! I also have a rare condition called complex regional pain syndrome. It's a neurological condition where your pain sends pain signals to wherever it wants. It usually starts with an appendage, so basically it feels like something is burning or stabbing you, but there's nothing that shows it. There are five criteria you need to meet, but no actual test for the disorder. You feel like you're dying, but no one sees it. That's the worst part about it, people don't believe you. They think you're crazy , like who would want that,,,??? You have to see to see 2 psychiatrists before u see a neurologist, rheumatologist, and a pain specialist. I was very lucky… the disease was caught early. Or I would have lost my hand. It no curable and it's spread through my body in the 2 years I've been diagnosed. I have a spinal implant but will probably need another. I often can't leave the house because of the pain. I also have a husband that just doesn't get the extent of pain. My health has also deteriorated, I've been hospitalized 4 times and I'm only 45 years old. I am now living for me doing as much as I can….I will always listen if u want to talk.