What does the word Cancer mean? Is it just a simple word?

Posted by Merry, Alumni Mentor @merpreb, Feb 28, 2019

When I was first diagnosed with lung cancer I found it very hard to identify with the word, never mind the illness it represented. Back in 1997 my prognosis was less than 15% survival, so then it meant death. After 22 years and more lung cancers that I have survived it's just a word cancer- such a plain word- doesn't really mean what it did to me. Cancer is complicated, its a journey, an experience, war, battle, ...fight, etc. What it means to me is being truthful, and genuine, trustworthy and completely honest. I don't have room in my life for even the slightest fib. Cancer is also life for me, because, damn, I'm still here!
What does it mean to you?

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@alamogal635

Gosh, I could go on and on about the various experiences prior tot he surgery and then after. Let's see the most salient ones to talk of. I remember asking repeatedly for water when I was kind of in and out fo the anesthesia endnote getting it for quite a while. I must have slept them. When I woke up next, I expected a lot fo pain and discomfort, but didn't have it--I felt like I'd been kicked int he right side by a mule in certain positions, but in others it was just kind of sore. I was SO tired. I slept and then the charming PT woman come by and was insistent the I breath in the spirator, and then we walked a little. I felt like I had a big hard bag under my ribs. I walked, but wasn't breathing right according tot he PT and my sats were in the 80s. Gee-I'd just gotten up from surgery. Had absolutely no appetite, but was given some sort fo liquid diet and got it down as I knew to eat. The doctor came by and gave the good news and then I think Ir rested again. The TWiLIGHGT ZONE thing was a large clock not he wall which stayed 2 hours ahead of time. I'd wake up and didn't know if it was day, or night. You'd think someone there could have lifted the darned clock, reset it and that would have been that. In between I tried to work with the spirator. Wasn't too successful. Night one passed and the next day I was more with it. Ate--ordered my own meals--made myself eat as much as I could and was so thirsty--drak water and tea (Unswteeted) galore! PT sever times a day--still PT didn't like Oxygen Sats and this went on for the 3 days I was in the hospital. Really thought the hospitalization, the pain was not unbearable. Iw anted out fo there and promised to go home with Oxygen, call for home health, and had my trust housekeeper/friend stay with me for the weekend. Gosh I wanted the heck out fo there ASAP. The--doctor thought I was "one thought woman," and ah the glories of being home! I slept the sleep of the just that night and have front hen on. There are some twinges of pain--difficult to get comfortable in bed at times. I have been walking around the house a lot-1800 steps yesterday and one moping of a floor where one of my dogs had an accident. am not idle, but also rest a lot in between things. Dr. wants me on oxygen until the end of the month and so I'm waiting fro a portable one. It will come Thursday. These days I can go without the Oxygen for longer periods of time and even sleep without it. . Today PT--not the one from the hospital is coming by to show me some other exercises to do and help expend my lungs. I've been coughing more at home than I did in the hospital and this is supposed to be a good thing so I cough and honk away. By and large, it has just been week. There is soreness and discomfort at times, but for this kind of surgery, Ia ms upraised that it was not a whole lot worse. Feel blest to have had it so well. Speaks well for my surgeon and his skills. I guess I am tough. Didn't even know I had it in me! Had my old doctor not retired when redid, then I'moved to a younger once who is compulsively thorough, this cancer would never have been caught as early as it was, and things would have most likely been a whole lot worse. So I'm thankful fro all. Somehow this diagnosis has been humbling as well as a challenge in seeing how well I can recover at the age of 68. Hope that answers your questions. Hope to take my first steps outside--really walk on Friday after the portable oxygen come. I know the specter of cancer does not go completely away, but right now it feels good to know the darned thing is gone. Good riddance to a nasty crazy nodule that meant me no good.

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@alamogal635- I am so sorry that it's taken me so long to respond to this post. I really felt every word in this. I'm surprised that you were so thirsty because of the saline drip in your veins. I hallucinated the first few days and threw out the PT gal so I could sleep. I let her back in in four hours. I slept four hours and was sweet as pie when she returned. 🙂

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Don't worry about response time. I love following everyone on this site. I always drink a lot of water and other liquids and despite the saline drip, was dry in my throat--maybe the breathing tube--maybe a slight hallucination from the after effects of the anesthesia. Anyway, I'm glad you had a good PT therapist--don't blame you for throwing her out during the first four hours! Sounds like you did well and had good post op nurses.

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The doctors never used the "C" word around me in 1975 they just said that I had Stage 4 Nodular Lymphoma, a cousin of Hodgkins. I knew what Hodgkins was, Cancer, and cancer was a death sentence at that time. I was more afraid of the word cancer than I was of dying. Once I was able to get over the fear of the word I was okay. As you have figured out I'm still alive and kicking. Chemo has changed so much in the last 50 years, for me I had to take pills for over 4 years plus 6 weeks of radiation. Radiation has side effects, thirty plus years later I am having to live with those side effect, I do not have any side effects from the chemo. I still have to have an annual check-up because a blood related cancer is never "gone/killed/dead" just dormant. I have blood work every 6 weeks so the doctors are keeping an eye on me.

Each year the treatment for cancer keeps getting better, because of what we go through. Just keep that in mind each time you have another chemo session, another surgery, or radiation session. Someone will not have to go through what you are because the doctors are learning new things because of us.

Good luck,
mlmcg

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@mlmcg- good morning. I agree that both the term and treatments have changed remarkably since you started treatments. Mine began in 1997!

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