Connect
← Return to Limited Scleroderma or CREST Syndrome: What helps?
Discussion
Limited Scleroderma or CREST Syndrome: What helps?
Autoimmune Diseases | Last Active: Jul 25 9:13am | Replies (80)Comment receiving replies
Most definitely you should find a rheumatologist who specializes in scleroderma/Crest. My rheumatologist usually does a CBC panel which includes testing hemoglobin levels. Hemoglobin is a protein in your red blood cells that carries oxygen from your lungs to the rest of your body. Very important to sleep on a incline and take nexium before bed until your doctor prescribes you something. This is why you are burping foam. Also don't eat before bedtime. Borage oil, gotu kola, and bikram yoga have helped my disease tremendously.
Replies to "Most definitely you should find a rheumatologist who specializes in scleroderma/Crest. My rheumatologist usually does a..."
Definitely get a Rheumatologist who understands CREST. I am on schedule to have a Pulmonary Function Test (PFT), CBC, Echo and a twice a year meeting with my Dermatologist. I have had surgeries on my fingers to remove the calcium deposits. I do have acid reflux but I avoid eating late, acidic foods, spicy foods etc and this is under control. I was diagnosed 25 years ago. I practice yoga, this helps so much with the hands and feet mobility and the breathing, lung capacity. Tumeric and Ashwagandha seem to help along with 200mg of Plaquenil and 10mg of Minocycline. Staying as active as possible has been extremely helpful.
Remember you have to fight for yourself and Doctors only know what they know. The young Doctor that diagnosed me so long ago was curious and didn't give up for me. Find a champion and don't settle for less.
Connect
Good luck on your tests!