Until I read your post I had not heard of CREST Syndrome either. I agree with @johnbishop that a trip to Mayo would be a good idea. If that is not possible due to insurance or travel expense, you should at the very least seek help at a multidisciplinary medical center, like a university medical school. It is important that you advocate for yourself in seeing the best specialist possible. This will ensure the most effective treatment.
Do you live near a Mayo facility or another medical center such as that?