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shasmith (@shasmith)

CREST Syndrome

Autoimmune Diseases | Last Active: Jan 18, 2020 | Replies (25)

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@hopeful33250

Hello @shasmith

Until I read your post I had not heard of CREST Syndrome either. I agree with @johnbishop that a trip to Mayo would be a good idea. If that is not possible due to insurance or travel expense, you should at the very least seek help at a multidisciplinary medical center, like a university medical school. It is important that you advocate for yourself in seeing the best specialist possible. This will ensure the most effective treatment.

Do you live near a Mayo facility or another medical center such as that?

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Replies to "Hello @shasmith Until I read your post I had not heard of CREST Syndrome either. I..."

No. I live in NW Arkansas. But I think my insurance is good where ever. I am trying to see a Rheumatologist. Problem is, he won’t see me until I’m ‘referred’ and after the third request, I’m tired of asking. Looking for a new HCP now. I may look into Mayo. My brother in law goes to MN for his Parkinson’s. Thank you