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shwetha (@shwetha)

Acquired HIE (Hypoxic Ischemic Encephalopathy)

Brain & Nervous System | Last Active: Jul 16 9:18am | Replies (9)

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@lisalucier

Hi, @shwetha – I'd like to add my welcome to Mayo Clinic Connect and express my condolences you have been through all of this with your young son. As a mother myself, I can't imagine having a child who is happy and healthy and suddenly takes a dramatic turn, starting with a massive cardiac arrest.

I'd like to bring into this discussion @jakedduck1 @crstyday40 @ssaygi @lakelifelady @mmaryemc for any thoughts they may have for you and your 4-year-old son who has anoxic ischemic encephalopathy, has ongoing seizure activity and is in a minimally conscious state. They may have input from some of their own experiences about keeping him awake and using medications which are failing to control his seizure activity or should sedating him and waiting for his brain to heal.

Will you share more about the hyperbaric oxygen therapy your son will be having? How are you feeling about these infusions?

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Replies to "Hi, @shwetha - I'd like to add my welcome to Mayo Clinic Connect and express my..."

Hi @lisalucier
Thank you for the reply.

We started HBOT one week back! He got his 8 treatments so far. He sits in a chamber with 2atm pressure with a hood on with 100% oxygen. We are committed to do 40 sessions. After that we might take a break and have another 40. It costs 150$ per session. Im meeting lots of patients with brain injury who are seeing good results with this treatment.

About CordBlood Infusion, we are working with Duke since my son got sick. Because of his sensitivity and ongoing seizures, we had to wait. Now they accepted him to do the infusion. He passed the medical review, we might here soon about date.