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shwetha (@shwetha)

Acquired HIE (Hypoxic Ischemic Encephalopathy)

Brain & Nervous System | Last Active: Jul 16 9:18am | Replies (9)

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@shwetha My heart goes out to you and your son. I don't have personal experience with your son's medical condition, and I wouldn't know what is best for him in his treatment. That is something that his doctors and you must decide together.

I did want to mention that I had recently posted a video about a guy, Max, who had an anoxic brain injury as a child which is in the Art for Healing discussion in the "Just Want to Talk" group. It's on page 14 and called "Big Air Max." Here's the link. https://connect.mayoclinic.org/discussion/art-for-healing/?pg=14#comment-272096

Near the beginning of this documentary is a friend of mine, Mack Bailey, who you'll see with his guitar where he and Max are writing a song together. You'll hear it at the end of the video. Mack is a singer/songwriter and a music therapist, and very involved with programs for people with disabilities like skiing and theraputic riding, and he uses his music not only as therapy, but for fundraising for these programs. He knows Max, and can probably connect you with his folks if that might help. I'll send a private message on how you can contact Mack.

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Replies to "@shwetha My heart goes out to you and your son. I don't have personal experience with..."

Hi @@jennifer@hunter

Thank you for the reply!
I got you message. I will contact to Mack Bailey to get in touch to Max parents.