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amber3212 (@amber3212)

Functional Neurological Disorder (FND)

Brain & Nervous System | Last Active: 4 days ago | Replies (80)

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Hi, @marycoy, welcome to Mayo Clinic Connect. That's great you are trying to help your granddaughter get the right treatment for her conversion disorder/ functional neurological disorder.

Your search to better understand this disease and what is the source of her symptoms – malfunction between the nervous system and the brain, or something psychological and behavioral – sounds wise. Here is some Mayo Clinic information that may be useful in your search for further clarification on the source of your granddaughter's symptoms.

I'd like to ask @uldiver @amber3212 @jubilee @techi @jenniferhunter to offer their thoughts on the source of the symptoms for patients who have a Conversion Disorder/ Functional Neurological Disorder diagnosis like your granddaughter.

Has your granddaughter seen multiple doctors to consult about her condition, @marycoy? Has any treatment been recommended to this point?

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Replies to "Hi, @marycoy, welcome to Mayo Clinic Connect. That's great you are trying to help your granddaughter..."

Hi @marycoy. I also have FND and I have been told and have come to believe as a result of my treatment that it stems from a central sensitization issue and psychological issues are NOT the root cause. Mayo Clinic successfully treats patients with FND as a central sensitization syndrome within their 3 week pain rehabilitation program. The same protocols used to address chronic pain also work for other FND symptoms. It has changed my life and for that reason I highly recommend the program. If you have not already viewed Dr. Sletten's video that explains central sensitization, you can view it at https://www.youtube.com/watch?v=8defN4iIbho. Dr. Sletten is located at Mayo Clinic in Florida, but the same program is available at Mayo Clinic in Rochester and Arizona. If your granddaughter has not already had a consult at one of Mayo Clinic's Pain Rehabilitation Centers, it may be valuable for her to request a consult with one of the Pain Rehabilitation Center teams. She can self-refer to request an appointment if her local physicians are not familiar with this program, or not willing to make the referral for her. The link to the webpage is https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center.