← Return to Functional Neurological Disorder

Discussion
amber3212 (@amber3212)

Functional Neurological Disorder

Brain & Nervous System | Last Active: Jul 17 11:44am | Replies (49)

Comment receiving replies
@lisalucier

Here is some Mayo Clinic information on functional neurologic disorders/conversion disorder https://www.mayoclinic.org/diseases-conditions/conversion-disorder/symptoms-causes/syc-20355197.

I'd also like to bring @jubilee into this discussion, as this member has mentioned FND and may have insights on the condition and its treatment.

@amber3212 – how is your mom doing? @uldiver – do you or someone you know also have an FND diagnosis?

Jump to this post


Replies to "Here is some Mayo Clinic information on functional neurologic disorders/conversion disorder https://www.mayoclinic.org/diseases-conditions/conversion-disorder/symptoms-causes/syc-20355197. I'd also like to..."

A lot of other countries consider my diagnosis a ‘functional’ disorder when it is a serious, neurological disorder that should be treated as so. It is sad when this diagnosis is thrown around bc they can’t find the correct answer the first time. Thankfully I do have the proper diagnosis and I have good doctors and will hopefully be seeing an M.E. (myalgic encephalomyelitis) specialist next year. I’ve heard we are about 2 years from treatment being released for this diagnosis and there is a ton of research.
My advice for those who get this FND thrown around: seek help elsewhere and continue to advocate for yourself.
I thankfully have not had this diagnosis, but it was mentioned in the neuro MD’s notes from Mayo before they found my diagnosis and it pissed me off when I found out what it meant. I’m not crazy and I have many physiological problems that need to be addressed and thankful that I have good doctors here in town to help me as best they can. The main MD at Mayo I saw was excellent and after her and the specialists talked determined my diagnosis based on my test results.
Keep fighting to find the right answer. Nothing worse than the unknown or MDs that don’t believe you! Good luck