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← Return to Aspergillus with MAC
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@windwalker I am sorry to hear that, I had no idea you were so short of breath and felt so bad you always sound so upbeat and helpful and often out bike riding in summer with your wee dog! We are so lucky to have you on here and really really appreciate all your help, an inspiration to us all. Friggin genetics, I have a CF gene, I guess you have been tested for that. I hope you Stay well over winter avoid those nasty bugs. Bring on a cure! Take care Heather
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I also have a CF gene. I was diagnosed with Bronchiectasis, nocardia and Mac in 2003 at National Jewish Research Center. I was on the three meds for a year. Then was treated with bactram for a year for the nocardia. Been treated off and on thru the years for Nocardia. I finished another year on bactram about 6 months ago and have just recently been diagnosed with Mac again. So I’m back on the big 3 meds. I seem to tolerate the meds ok - just getting tired of always being on ‘something’. Sure glad I found this site . It does help to read and compare - especially how we all react to the meds. What works and what doesn’t.
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@heathert Thank you so much for the kind words. I had been doing really well, my shortness of breath just started getting worse over this winter. It has been bad before and then got a bit better, so I am optimistic that I can pull out of this. It is probably time for me to go into pulmonary rehab. I try to always be cheerful and upbeat, it is just how I like to be.