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Five Things I Wish I’d Known Before My Chronic Illness

Neuropathy | Last Active: Apr 27, 2021 | Replies (59)

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@becsbuddy

@noahs I so agree with your term “ roller coaster “! I feel like I’ve been on one for 18 months and I don’t like roller coasters! I was doing pretty well and then, I got the flu because of my immunocompromised system. The articles about kindness to yourself have been very helpful. I’m sorry you’ve had a flare-up! I keep trying to do the same things I always did, just in a different way. Takes forever to accept a new normal. Becky

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@becsbuddy Those of us on immunosuppressants really do need to be careful. I caught Legionairre's in December 2017 which made me very conscious of just how careful I need to be.
It is tough to accept the "new normal", and sometimes I feel like I have every problem possible and then I realize I am throwing myself a "pity party" and just get over it. Yep, I have some problems, but things could be so much worse. I am grateful for what I now have and what I am able to do. I exercise at my health club about 6 days a week, maintain our home and do all of the shopping and cooking, and help others in whatever ways I can, so I figure I am functioning awfully darned well.
JK