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Five Things I Wish I’d Known Before My Chronic Illness

Neuropathy | Last Active: Apr 27, 2021 | Replies (59)

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@jenniferhunter

@sadie168 While you are at Mayo, take some time to enjoy the atmosphere there and the artwork and music (they have pianos that people play). I have been to the Rochester campus and love it there. To me, it feels like I'm not going to a doctor's office. Write down your questions. Every person I saw there was kind and friendly as well as good at what they do, so you'll be in good hands. You can get a good sense of what it's like if you watched the Ken Burns documentary on Mayo. It talks about the history and has patient stories. I've had years without answers too and that is hard, but keep advocating for yourself. It makes a difference. I did find answers at Mayo and help that I couldn't find locally at home. I would also encourage you to read research about your health issues.

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Replies to "@sadie168 While you are at Mayo, take some time to enjoy the atmosphere there and the..."

@jenniferhunter I always like your positive comments! When you suggested that I do something creative to work through this journey I’m on, I thought what a good idea. I’ve been pondering what kind of quilt I could design. Maybe with some of your positive prompts...... We’ll see!