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Five Things I Wish I’d Known Before My Chronic Illness

Neuropathy | Last Active: Apr 27, 2021 | Replies (59)

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@sadie168

Thank you for posting the article. I can relate to your additional comments as well. I allowed the medical system to frustrate me so badly that I accepted there were no answers, and this was just how my life would be. Last spring I had to force myself to get back into this medical circus. I am taking the leap of faith and going to MAYO in a few weeks. Not having answers has been the most difficult part of this very long journey. I just recently joined connect and it’s sad that people are battling so many challenges, but it’s nice to know I’m not alone.

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Replies to "Thank you for posting the article. I can relate to your additional comments as well. I..."

@sadie168 While you are at Mayo, take some time to enjoy the atmosphere there and the artwork and music (they have pianos that people play). I have been to the Rochester campus and love it there. To me, it feels like I'm not going to a doctor's office. Write down your questions. Every person I saw there was kind and friendly as well as good at what they do, so you'll be in good hands. You can get a good sense of what it's like if you watched the Ken Burns documentary on Mayo. It talks about the history and has patient stories. I've had years without answers too and that is hard, but keep advocating for yourself. It makes a difference. I did find answers at Mayo and help that I couldn't find locally at home. I would also encourage you to read research about your health issues.