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Waiting for pathology results from second brain tumor. Really nervous
Brain Tumor | Last Active: Mar 20, 2019 | Replies (15)Comment receiving replies
Hi @wendeth I agree with your statement about all of us having the need to get our paperwork, etc. in order! As difficult as some of the discussions on this were with my wife, when she was fighting her cancer war it made a difference. First thing was she signed the necessary HIPPA forms so her doctors could talk about her situation directly with our adult children. That was a huge help for them! Then we also put together our estate plans, wills, advance medical directives, POA (legal and medical), etc. She also explained her final wishes as to her funeral, cremation, giving certain gifts to certain people, even the music at her celebration, and more. When the time came this was a much larger help to us than I had ever anticipated! None of us had to guess as to what she would have wanted.
Replies to "Hi @wendeth I agree with your statement about all of us having the need to get..."
Hello @IndianaScott ,
thank you for sharing this difficult moment of your life. I have a GBM WHO 4, diagnosed last fall. Statistically, I should be dead right now. The timing of the diagnosis was a real crisis for my family. We all cried a lot. I made all my papers, wills, funerary arrangements, selection of music and photos to make life easier for my husband lover and my adult daughters for whom my situation is so difficult. You touched me by admitting that your wife's actions had relieved you. It was my desire and now that everything is settled, I feel relieved to have taken care of those I love.
I am 53 years old. I do not want to die but I want to be realistic. Luckily, I think the doctors were wrong about me. They are often wrong. Brain cancer is still very poorly understood. I refused treatments that would have diminished me. I only do chemotherapy that I support pretty well. All that to say that you are right, each case is particular. Each person reacts with his story, his needs. There is no rule. It's good to doubt and keep a small glimmer of hope. No one knows the future. Good luck to all, sick and accompanying.
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@IndianaScott thank you for sharing your personal story. I still haven't heard any news on the pathology yet My husband and I need to get things in order. He struggles with Parkinson's. I have taken some of the steps you mentioned. It is hard to take it all in.
I am sorry for your loss and appreciate your willingness to reach out to others.