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@amandajro

Hello @pjf and welcome to Mayo Clinic Connect. I am sorry to hear that your disease seems to be getting worse. I can see that you are interested in feedback from other members with experience with arachnoiditis. For that reason, I will bring in @larauen and @jelizabeth who have recently commented in this discussion to they might be able to provide additional support.

What pain medicine are you taking and how is your stimulator working?

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Replies to "Hello @pjf and welcome to Mayo Clinic Connect. I am sorry to hear that your disease..."

Good morning. I now take 10 mg oxycodone 2x/day and 5 mg methadone 2x/day. Unfortunately, my stimulator does not work for the pain any longer. I have discussed this with my pain management physician and after reviewing the X-ray of the implant agrees it should be removed. The representative from the company (St Jude Electronics) has tried to adjust it several times and is not able to get it to the pain site. Thank you. I would appreciate any support I can get.

Thank you Amanda. I would appreciate any feedback I can get