Hello @larauen, I would like to add my welcome to Connect along with @amandajro and other members. I'm not sure if this is helpful information but this seems like it may be related to your symptoms.

Delayed symptomatic spinal adhesive arachnoiditis after surgery for thoracolumbar flexion-distraction injury: A case report:
-- https://www.sciencedirect.com/science/article/pii/S2210261220306404

@jenniferhunter has some experience and may be able to offer some suggestions for you for finding some help. I'm not sure if it's an option for you, but Mayo Clinic would be a great choice for a second opinion and treatment. If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.