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Anyone been diagnosed with arachnoiditis after spine surgery?
Spine Health | Last Active: May 31 7:18am | Replies (176)Comment receiving replies
This so sounds like my story. Same surgery but I had fusion from T5 to S1. My doc said I can do no more for you. Just found out by new imaging this week and don't know where to turn for honest answers
Replies to "This so sounds like my story. Same surgery but I had fusion from T5 to S1...."
Know what you mean. I keep getting worse....pain killers have no effect anymore. Mayo Neurology in Rochester recently declined to see me.
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Hello @larauen, I would like to add my welcome to Connect along with @amandajro and other members. I'm not sure if this is helpful information but this seems like it may be related to your symptoms.
Delayed symptomatic spinal adhesive arachnoiditis after surgery for thoracolumbar flexion-distraction injury: A case report:
-- https://www.sciencedirect.com/science/article/pii/S2210261220306404
@jenniferhunter has some experience and may be able to offer some suggestions for you for finding some help. I'm not sure if it's an option for you, but Mayo Clinic would be a great choice for a second opinion and treatment. If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.