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robge (@robge)

Just diagnosed....continue testing for causes

Neuropathy | Last Active: Feb 23, 2019 | Replies (17)

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@robge

Thanks for your reply @ericvnelson. There are a lot of similarities in our cases. I am 53 and although I was just diagnosed, I have been experiencing numbness and loss of feeling in my feet for about 10 years. The numbness has progressed to my knee on my left side and my ankle on the right. Recently, I have also begun noticing numbness in my fingertips and also that the areas affected by the neuropathy are cold – severely cold and they take hours to warm up. I have also had balance issues for years, but it has gotten much worse lately. I am not as active as you, but have done yoga off and on for years and am currently working. My neurologist also suggested that I try Tai Chi and swimming. Online, I began reading about acupuncture for PN, but it seems to be mainly for the pain and I am not experiencing pain. I have also read about deleting glutens and refined sugar from your diet, but have not begun doing that. My neurologist told me that there was no treatment and told me the only thing I could do was live a healthy lifestyle – eat right, eliminate alcohol, don't smoke, exercise, and eat right. I hope you continue to be positive. For me, meditation and mindfulness help me with the positivity and the stress in my life. Agree that it is difficult to remain positive. Wish that there were more that could be done for all of us. I have not heard of egoscue, but googled it and will read up on that.

Thanks again for taking the time to reply and share your story with me. Hoping you find some suggestions that are helpful.

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Replies to "Thanks for your reply @ericvnelson. There are a lot of similarities in our cases. I am..."

@robge When you talked about cold parts of your body where you have neuropathy, that suggests to me that you may have decreased circulation there, and nerve compression and decreased circulation can be caused by physical fascial restrictions that can happen anywhere in the body. I have thoracic outlet syndrome that has caused my hands to turn blue and cold (actually cold to the touch), with arm pain, tingling , and numbness. I have been treating this in physical therapy with myofascial release. MFR can help so many conditions where conventional medicine hasn't helped. There can be similar issues with tight tissue in the hips and pelvic area that are similar. If your issues are physical, fascial stretching can help.

I created a discussion for MFR at https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

You may want to look at that and see what you think. I have had great results with MFR. Also if you have low thyroid function, that tends to cause cold hands and feet. My feet were always cold until I took thyroid medication to assist my thyroid that was not producing enough hormones.
https://www.mayoclinic.org/diseases-conditions/hypothyroidism/symptoms-causes/syc-20350284
https://www.mayoclinic.org/diseases-conditions/thoracic-outlet-syndrome/symptoms-causes/syc-20353988
https://trainingandrehabilitation.com/how-truly-treat-thoracic-outlet-syndrome/

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