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robge (@robge)

Just diagnosed....continue testing for causes

Neuropathy | Last Active: Feb 23, 2019 | Replies (17)

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@johnbishop

Hello @robge, Welcome to Mayo Clinic Connect. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where it will have more visibility with other members who share your symptoms and may be able to offer some suggestions from their experience.

Groups > Neuropathy > Living with Neuropathy – Welcome to the group
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Are you able to share a little more about your diagnosis? How were you diagnosed for neuropathy?

This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.

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Replies to "Hello @robge, Welcome to Mayo Clinic Connect. I'm tagging our moderator @lisalucier to see if we..."

@johnbishop .
Hi John. Thanks for the welcome. Sorry if I posted in the wrong location.

How I got diagnosed….. I mentioned to my primary care physician that I had experienced numbness, tingling, and lack of feeling in my feet for the past 10 years or so, that I had a strong family history of PN (all my blood relatives have it except my son has not been diagnosed yet). He did an X-ray of my hips and lower back and stated that both looked normal and referred me to a neurologist. On the first visit with the neurologist, he asked questions and did a basic exam and then scheduled me for nerve conduction and EMG testing. Based on those tests, he diagnosed me with PN. Also, I have had severe leg cramps for years which I did not realize might be related to the PN.

I return to the neurologist in late March and have been trying to educate myself since my diagnosis so I know what questions to ask when I go.

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