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trixie1313 (@trixie1313)

Neuroendocrine breast cancer

Breast Cancer | Last Active: Mar 20, 2019 | Replies (8)

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@hopeful33250

@trixie1313

Hello Trixie,

I'm assuming that your doctor is talking about the 68 GA Doatate PET. This is the newest and best way to evaluate NETs. Here is some information from a Connect post about this test. Just click on the link, https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/

Do you have a date scheduled for your PET scan?

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Replies to "@trixie1313 Hello Trixie, I'm assuming that your doctor is talking about the 68 GA Doatate PET...."

I had my PET scan as well as MRI brain and am told no tumors are found! My oncologist phoned me today to let me know that our pathologists as well as those in the city where the surgery was performed showed neuroendocrine differentiation of breast and not actual neuroendocrine cancer. She also had pathologist send these out elsewhere for another read and came back the same. So I am being reassured now that this is found rarely in the breast but is not the same as actual NET and will not have to have more chemo. I've been placed on anastrozole AI, will have to have twice-yearly infusions to help with bone loss as I already have osteoporosis, and will also be getting another PET in 6 months to follow up on this. I am SO RELIEVED I don't have to undergo more chemo at this time!

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