← Return to Cauda Equina Syndrome: Pain, symptoms, management and prognosis

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@jolenekellner53

@SkiprelI957 If you're avoiding surgery, I have intractable pain after two FUSIONS (2nd successful) that only ceases after tons of narcotics. My pain management doctor has suggested a "intrathecal pain pump" where they implant a hockey puck-sized receptacle to the left or right of your belly button. From that receptacle a catheter tube is threaded under the skin to the spine where it directly releases meds directly into your spinal fluid. They generally do a trial run first but it sounds pretty exciting.The pump is filled generally with morphine (Baclofen for spasms) and you go back to the doctors office every 4 to 6 weeks (unsure of intervals, could be longer!) for your "refill" and they say you're in/out in 15 minutes. It runs on a battery which lasts 5-7 years. This traditionally was given to terminal patients, but more and more pain management doctors are using it on chronic pain patients, especially ones they can't figure out the source of the pain, like ME. As this technology is nearly 100 years old, they've got it down. GOOGLE it. I'm going for it. It might help you. Good luck. Jolene Kellner

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Replies to "@SkiprelI957 If you're avoiding surgery, I have intractable pain after two FUSIONS (2nd successful) that only..."

Hi I also am pursuing a intrathecal pain pump for chronic widespread pain and newly develooedncauda equina. Did you ever have one put in or a trial? Wondering how it worked for you. I need both pain meds and antispasmotic pain meds I think. Constantly in pain with a really high pain pill tolerance and everyone is not writing for narcotics anymore. Frusterating, what's our solution?