@skip1957

No, all these years they kept telling me they couldn't see anything that would cause my pain. Then last year one of my new doctors finally said she thought the cysts were causing my issues. From there she sent me to Dallas, TX to see one of only 3 neurosurgeons in the U.S. that specializes in the cysts. He is the one that finally confirmed that they were compressing the cauda equina nerves & causing all my issues. I was waiting for a surgery date but just found out my insurance denied it. Your issue sounds so similar to mine, are you sure you don't have any of these cysts? They do compress at the nerve root. Google Tarlov Cyst Foundation and check them out. Did you request your records and read through them? The radiology reports will most likely tell you more than your doctors were mentioning to you. Ask about all the incidental findings and anything else you weren't informed about. Please send an update after your appt. Good luck to you & take care!