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Cauda Equina Syndrome: Pain, symptoms, management and prognosis
Spine Health | Last Active: Apr 18 10:19am | Replies (60)Comment receiving replies
@skiprel1957
You need to keep pushing and asking questions. When your doctor puts his/her head in the sand and doesn't do anything more for you then it's time to find another doctor. Request your records including any imaging discs. You should collect all your records before going to another doctor. Push for answers and tell them you're tired of being ignored right off the bat. I've done it for 15 years because the doctors kept telling me they didn't see anything that would cause my pain. Come to find out, the problem showed up in the very first MRI they did! I've slowly deteriorated over the years. Last June the CES symptoms started snowballing and currently are continuing to progress. I have Tarlov Cysts and a tethered cord caused by a fall. Doctors don't acknowledge the cysts because they are an "incidental finding" and aren't supposed to cause issues. They DO cause many debilitating symptoms and need to be taken care of. I absolutely understand your frustration cuz I've gone through it all too. It upsets me to no end that it's an emergency surgery for everyone else but because they won't acknowledge the cysts it's not for me. One of my doctors just told me she would recommend a lawsuit because of they way I've been treated (or mistreated I guess). I'm just left here to suffer just like you!
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Already had my first appointment with a new Surgeon, will never go back to the hospital I had surgery at, nor do I ever plan to see my Surgeon that did the surgery, unless it's with Lawyers staring at each other across the table. Had my new Surgeon contact my pain Doctor, I'll find out what he said to her at my next appointment. Seems like he's willing to work with her. I agree with you, I'm not going to let a Doctor treat me like he did. especially when he handed me my diagnosis written on an envelope so I could google it. Never even discussed my diagnosis with me. I have an appointment with my Neurologist later this month, He recommended the Surgeon for back surgery. Should be an interesting visit seeing I'm going to show up in a wheelchair. I don't hold anything against him, he had no way of knowing it would turn out this way. I've been seeing him for about 15 years so we're a bit bonded I guess.
Did anyone tell you the nerves have been compressed at the nerve root? That's what the blood clot did to me. I told the Lawyer that when I was brought back to my room in intensive care my Son saw that the tubing for the drain in my back was pinched off and the drain was not working. Next day they had a new style of tubing. Not sure if that was the cause of the clot or not. Lawyer didn't seem to be enthused about it. I'll have to see what they find in the records. My new Surgeon asked if I had talked to a Lawyer, I said yes, then he said They will want his records as well. He told me the first surgery has caused the need to have another surgery below the first surgical area. Next time I see him I will request that he has the MRI's in front us so I can see what he's talking about. after 2 back surgeries and a prostate surgery I'm a bit gun shy as to having another one. I can only hope that someone listens to you and you get the help you deserve.
out for now,,,,,,,,Skip