← Return to Cauda Equina Syndrome: Pain, symptoms, management and prognosis

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@qball2019

Cauda equina syndrome is normally an emergency unless you have Tarlov cysts also called perinerual cysts. I just found this out after 15 years of being called a "chronic pain patient". You could have developed them from some previous injury or possibly from your surgery.

Doctors rarely seem to want to acknowledge these cysts because they were told in medical school that they don't cause any issues. True, there are people that have the cysts and they may not experience any issues but if they decide to grow larger they cause many debilitating symptoms. If they can't seem to find any issue for your CES you need to request your records and see if there is any mention of the cysts. Also, ask your doctor to bring up your images from your pelvic scan (while you're in office) and look to see if you have any of these cysts. Remind your doctor that you are trying to avoid permanent nerve damage.

I do realize that I'm replying to an old thread but thought it may also help someone else with a similar issue.

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Replies to "Cauda equina syndrome is normally an emergency unless you have Tarlov cysts also called perinerual cysts...."

My CES was caused by a blood clot after back surgery. They did the emergency surgery within the allotted time but significant nerve damage was done.