← Return to Cauda Equina Syndrome: Pain, symptoms, management and prognosis

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@lorirenee1

Hi Skip, You have enough on your plate to worry about apologizes to me! Oh my! Thanks for asking about my cancer. Yes, it is in remission so far. Should be a joyful time for me, and at some level it is, but at the same time, my foot neuropathy is horrid, so it takes from the joy. I don't remember if I told you, but I got severe neuropathy right after my breast cancer surgery, so lawyers came to mind for myself, as well as you! You have to be made of very strong stuff, and have lots of money to start law suits. When I read about you, though, I really did think your surgery caused your problems that you have now. LAWYER jumped to the forefront of my mind. I think you would have to have a tough advocate in your corner to help you through such a difficult process. I swear though, your problems smell of big bucks owed to you. You just have to have the stomach to handle it. I do not blame you for being hesitant for more surgery. I am sure hesitant is way too mild a word. If I got more breast cancer, I would think twice as well, for God knows what would happen afterwards. I actually had a premonition about my breast cancer surgery. I thought that I would never have good health again. Terrible. Don't even know why I felt this way. Anyway, I take my marijuana over the counter stuff when the going gets very tough, and I am sure how much it helps you as well. Who would believe life could get so rigorous? One crazy thing that helps me, but it does, is I go to youtube and laugh my head off at old Rodney Dangerfield comedy acts, and find many other comedians that I adore. The oldies are the goodies, as I am 66, and love the laughter they bring. Maybe try it!!! So much on youtube that is great. I am also a wannabe beautician, so I watch hair cutting videos all the time. Been cutting my own curls for many years, and learn so much on youtube. Anyway, best of luck to you. Frankly, my heart breaks reading everything you are going through. I am sure you never would have believed such crap could happen to you. LIfe is lovely. Life is tragic. Regards to you, in your journey....trust yourself. Lori Renee

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Replies to "Hi Skip, You have enough on your plate to worry about apologizes to me! Oh my!..."

I'm happy to hear that your in remission, that's great. I no that the neuropathy is bad because mine was bad before surgery, now I have bad pins and needles in my feet from surgery on top of the neuropathy, I know it really sucks, All the numbness and pins and needles makes it feel like I'm walking on a dead foot. I always considered my self as being pretty tough old SOB , I do take pain very well but this can get pretty bad. I'm a veteran and VA took my pain meds away so I went three years with no meds, pain got so bad, that's why I decided to have the back surgery. They said my sciatic nerve was crushed in two places so you can imagine living life for three years with condition. Only some weed to help, I finally found a strain of Marijuana that helped my pain
I've been on disability for 17 years. Had A cerebral brain hemorrhage in 2002, caused moderate brain damage and almost killed me. Ended my career and now I have another life altering issue. At times life sucks bad but I say it's like standing at the plate, always take your best swing and go on to another day. So dealing with A law suite is no big deal, it's just the waiting around to find out if I even have a case that bothers me a bit.
As you I love you tube as well, Any time I need some info or just want spend some time exploring I go to YouTube. Seems that everything imaginable is on it. There are some people that share their CES experiences on there and I've learned from that. One guy was doing therapy for his CES, but I could see that the type of machines he was using told me that his therapy was very expensive. I guess if you have money you may get better help. I'm trying to walk more without my cane, doing this, I use different back muscles, It's really hard for me to walk though because of the nerve pain. I no this is kind of hard for me to say but I have rectal nerve pain besides the pain in my legs and back. I guess you could say it's a real pain in the butt, smile. have to make fun some times.
been great talking
Skip