1. < Neuropathy

Its just been two weeks, could this be Small fiber neuropathy?

Posted by italapino @italapino, Feb 16, 2019

Hi all. I am new to the group and have on my journey of getting confirmation of SFN. All started tweeks ago. Started with mild pins and needles on hands and feet and lasted for 5 days. The next day my feet to knees and fingers to forearms felt sensitive to temperature and felt sunburned. The skin sensitivity has now spread to random and more places with intermittent burning. My hands and feet get cold and wet real quick now, I wake up with full on adrenaline with what feels like trembling, light winded quicker, noticeably dry eyes/mouth sometimes, my feet and hands more like ache/throb, today a pinky has been a little bit more stubburn. I saw a neuro last week and he said its nothing of a concern and its rare that neuropathy progresses that fast. Has everyone else had that fast of a progression in relation to your neuropathy? I'm getting a second opinion with Mayo in Arizona in a couple weeks.

A little background, January I had some bouts of non-rotational vertigo and developed tinnitus and both have since gone away. ENT ruled it as possible eustachian tube dysfunction. The meds I took for that were, sinus flushes, nasal spray (flonase), meclizine, and ativan. My first neurologist stated that these meds would not have caused what I am feeling now.

Interested in more discussions like this? Go to the Neuropathy Support Group.

iceblue | @iceblue | Dec 22, 2019
In reply to @helennicola "Sounds like t-1’s are the same as Vicodin and hydrocodone here. Tramadol has the same effect..." + (show)
@helennicola

Sounds like t-1’s are the same as Vicodin and hydrocodone here. Tramadol has the same effect on me. I had a dr. refuse to give me a particular sleeping pill years ago (I had requested a small dose/amount prescription to try during a bout of insomnia) and he insisted on Ambien which I did not care to try due to many friends’ horror stories. I changed dr.s.

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No - Vicodin and hydrocodone are prescription meds here, and almost impossible to obtain due to their strength and their addictive nature. As I understand it - they are both more difficult to obtain than T3's.

You don't even need a prescription to buy T1's as the amount of codeine is so small - but that little bit is what takes the edge off for me.

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iceblue | @iceblue | Dec 22, 2019
In reply to @artscaping "@helennicola, @iceblue, Hello you two. Interesting discussion you have going on. I am just slipping in..." + (show)
@artscaping

@helennicola, @iceblue, Hello you two. Interesting discussion you have going on. I am just slipping in to wish you the most joyous of Holidays. Keep searching. We are all so unique that we seldom respond the same way to medications and treatments.

I am in month 3 of letting go of Nortriptoline. A few rough spots... then some stabilization, then more issues with the next 10 mg drop. Do either of you use an anti-depressant?

Helen, I heard back from P and B about the Balm. They do suggest that we experiment with increasing the THC. Just keep a journal and record how much you used each time. We also have a member who uses a 100% THC tincture for sleep. I have now moved up to 1:1 CBD/ THC. Our bodies seem to adapt to increased dosages over time and then we need more.

Have fun with family and friends. Stay in touch.
May you be calm and at ease. Chris

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Many thanks for the Christmas well wishes Chris! The same to you!!!

Anti-depressants would be the LAST thing I would try because I've had such bad experiences with them in the past. Both anti-depressants and THC cause me anxiety, so I avoid them like the plague. I was really afraid Gabapentin would have the same effect, but although I do feel *some* additional muscle tension, so far it's been manageable.

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Moderator
Lisa Lucier, Moderator | @lisalucier | Dec 22, 2019
In reply to @italapino "How are your symptoms now? It seems that symptoms come and go and vary every week...." + (show)
@italapino

How are your symptoms now? It seems that symptoms come and go and vary every week. I had my appointment with Mayo Clinic last week and did Autonomic testing and testing my blood. He definitely suggested it was small fiber neuropathy and next to do a skin biopsy. I am awaiting my followup now.

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@italapino - wondering how you are doing lately? How are your symptoms?

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