@mdemo - you have raised an issue that perplexes me, and that is the inconsistent nature of the symptoms. Minimal pain one day, raging the next. Today burning, tomorrow pins/needles.

And the more I read about this condition, the more I wonder how long I've actually had it - and whether it has and is impacting my autonomic nervous system. I've experienced 'periods' of time when my heart rate was going crazy (confirmed by my doctor), often for no apparent reason. I had to stop taking hot showers because they sent my heartrate through the roof. That eventually stopped and I can now take hot showers. More recently I had intermittent breathing difficulties. It's like my body went through periods where it 'forgot' to breath and I would have to breath very consciously. That also seems to have subsided (this was not anxiety related - although it was freaky). I also went through a period of time where my mouth was incredibly dry. So dry that my dentist suggested I be tested for Sjogren's Syndrome. I had the lip biopsy - and thankfully it was negative - although doctors had no explanation of why my mouth was so dry. Eventually, the dryness resolved - thank goodness!

Sometimes it feels like a rollercoaster.....