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Its just been two weeks, could this be Small fiber neuropathy?
Neuropathy | Last Active: Dec 22, 2019 | Replies (43)Comment receiving replies
I have nerve damage in my ears, which causes tinnitus and hearing loss, nerve damage in my moisture producing system which causes dry eyes and dry mouth, peripheral neuropathy which causes balance issues, Small Fiber Neuropathy, and gastrointestinal neuropathy, and nerve damage in my bladder which causes inflammation (Interstitial Cystitis). All of this nerve damage is the result of my Immune System attacking the organs/systems of my body (primarily nerves).
Everything is connected, all of my problems are caused by my Immune System, which has gone amok.
Best wishes teetee7.
Regards, ElaineD
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Thank you @elained . I apologize for missing your reply.
I've been having a very rough 3 weeks with my Autonomic Dysfunction, severe SFN, chronic pain and as you know (unfortunately) the list just goes on and on.
The Weather - has really riled things up - first time I have noticed the weather affecting my Autonomic Dysfunction. It definitely plays a huge role.
My Thermoregulatory System - is VERY out of whack. I have been having terrible bouts of sweating now 24/7. I have been trying to get in to see my Neurologist, but I have felt too sick.
My Neurologist started me on Midodrine and Fludocortizone for my Orthostatic Hypotension and it does help, but I still get syncope episodes every day. I haven't fallen recently, thank goodness, but have come very close. It scares me because I have 4 compression fractures (T5, T6, T7, T8) which all have over 50% loss of height and my discs in-between are all dehydrated. (My Neurosurgeon will not operate on them due to how high risk the surgery is and the success rate isn't good at all).
My skin - on both hands have red blotches on all my fingers and on the top of both. I have a lot of numbness, tingling, nerve pain in them. Both arms have nerve pain but lately it's been mostly deep muscle and joint pain.
My bladder is having more spasms and tenderness. I am nauseous a lot. I literally could lay here and type for an hour on all that's going on, lol. It's crazy!
I have decided to go ahead with getting my first Ketamine infusion. It has been recommended for a while by my pain management doctor and my Neurologist gave me the go-ahead on trying these infusions. I have been using Ketamine nasal spray for 2 years now (it has to be compounded at an apothecary) and it does help to take the edge off migraines sometimes and nerve pain. It's been hard to find people who have undergone Ketamine infusions for chronic pain.
If anyone has any experience or knowledge with Ketamine infusions, I would love to hear about their outcomes with them. When I was undergoing the plethora of Autonomic tests at the Mayo last year, the doctors here were very enthusiastic about Ketamine infusions.
Best wishes to you and everyone. It's one day at a time and one step at a time.
TeeTee