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DiscussionDiagnosed with MAC but not being treated
MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)Comment receiving replies
Replies to "I see a lot of MAC patients, but I don’t hear what is done about abscessus!!..."
I had Kansasii and Abscessus back in March, 2005. I had part right lung removed because of cavities that were made from Kansasii. I didn't go on meds until October 2007, becasue my doctors had no idea what to do. This was in a huge teaching hospital too. I went to National Jewish in Denver, they have or did have a Day Program for 2 weeks. I was started on emipenem and amikacin IV, which I learned to do at home. Did IVs for 9 months 3 times week. Also on oral, ethambutol, rafampin, avalox for 18 months. In June 2008 I was cured. In 2014, I was told i had MAC....So tar, I have been ok ...fingers crossed!!
@judyhodgern
I tested positive with abcessus for a year but didn't treat it and then my tests started to come back negative for the least couple of years.
Did you have more than one test come back positive?
Do you have symptoms and how is your scans look?
Shari