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Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)
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@suzyqueue

My MAC symptoms were 10 x worse than any side effect from treatment.
I was running 104 fevers, unbearable chills, coughing constantly not being able to catch my breath etc.
The side effects from treatment have been manageable...still not pleasant but it is also keeping the 9 cm cavity in my upper lung from growing.

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Replies to "My MAC symptoms were 10 x worse than any side effect from treatment. I was running..."
Terri Martin, Volunteer Mentor | @windwalker | Jun 4, 2019

@suzyqueue Hi. I am so glad that you made this statement. Doctors do weigh and consider risk versus treatment when deciding how to tackle disease. I am also glad that you pointed out that the active mac symptoms were worse than thw treatment. I wish you continued improvement in your health.

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judyhodgern | @judyhodgern | Jun 6, 2019

I see a lot of MAC patients, but I don’t hear what is done about abscessus!! I have it. Thanks!!!

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